Get a free visit for ED treatment. Start now

Last updated: Aug 15, 2022
3 min read

A resource guide for Alzheimer’s disease

 

Disclaimer

If you have any medical questions or concerns, please talk to your healthcare provider. The articles on Health Guide are underpinned by peer-reviewed research and information drawn from medical societies and governmental agencies. However, they are not a substitute for professional medical advice, diagnosis, or treatment.

For someone with Alzheimer’s disease (AD), it is easy to feel isolated and not know where to find trustworthy information and resources. The same goes for caregivers and family members of people with AD. Proper knowledge and resources to support you and your loved one can help you navigate this difficult journey. 

As of 2022, there are 6.5 million people in the US living with Alzheimer’s, and an estimated 16 million people serve as their caregivers (CDC, 2019). Given how many people are either living with the disease or taking care of someone with AD, many places offer support. For example, community organizations often provide low-cost or even free volunteer services, including support groups and respite care. 

This resource guide is meant to help you find the right resources for your or your loved one’s needs:

Places to find care for Alzheimer’s

Community support for families and caregivers

Finding financial support

  • National Institute on Aging, Paying for Care guide—Many older adults and caregivers worry about the cost of medical care. These expenses can use up a significant part of monthly income, even for families who thought they had saved enough.
  • National Council on Aging Benefits Check—This is a private group, and it has a free service that can help you find federal and state benefit programs that may help your family. These programs can help pay for prescription drugs, heating bills, housing, meal programs, and legal services. 

Educational materials on Alzheimer’s disease

  • Alzheimers.gov—This website is designed to educate and support people whose lives are touched by Alzheimer’s disease and related dementias. It includes information on living with dementia, dementia research, clinical trials, and resources for caregivers.
  • Alzheimer’s Disease Education and Referral (ADEAR) Center—A program of the National Institute on Aging (NIA), this site offers information concerning Alzheimer’s disease for health professionals, people with AD, and their families.
  • National Institute on Aging—This site provides resources for Alzheimer’s disease caregiving. Learn how to respond to changes in communication and behavior, provide everyday care, and get help when needed.

Alzheimer’s research and clinical trials

  • Alzheimer’s Association trial match—This tool from the Alzheimer’s Association connects individuals living with Alzheimer’s, caregivers and healthy volunteers to clinical trials that may advance Alzheimer’s research. 
  • Alzheimer’s clinical trial finder—This site lets you search for actively recruiting studies that you may be able to participate in, or help you learn about new interventions and treatments being considered.

References

  1. Alzheimer’s Association. (2022). Help & support, community. Retrieved from https://www.alz.org/help-support/community 
  2. Centers for Disease Control and Prevention (CDC). (2019). Caregiving for a person with Alzheimer’s disease or a related dementia. Retrieved from https://www.cdc.gov/aging/caregiving/alzheimer.htm